OCD IN THE AGE OF CORONAVIRUS

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OCD In The Age Of Coronavirus

When I was little, every cough or sneeze was enough to set me off on a frenzied panic in which I wondered what was wrong with me and how bad it was going to get. It fed directly into my compulsions of the time, and without a doubt, getting sick was my biggest fear.

It always felt so isolating to worry so much about something that wasn’t on other people’s minds, at least not in the way I was panicking about it. I felt like I was the only one who ever worried about getting sick, who ever toted around hand sanitizer by the bottle and held my breath around anyone who’d been sick in the last while.

Nowadays, it feels like that time again - only in reverse.

Coronavirus felt distant at first - something happening in other parts of the world, something that wouldn’t become a huge deal. And then, it started to spread. As part of my job, I track headlines from around the world, and I’ve watched the panic intensify on a global scale. Locally, my friends and coworkers can talk about almost nothing else. Events I’ve scheduled are getting canceled. The prices of items I’ve used in the past to protect myself against germs both real and imaginary are skyrocketing. And in the back of my mind, familiar thoughts lurk.

Of course, there is a large difference between an actual outbreak (or pandemic, or epidemic, or whatever it’s being called nowadays) and the thoughts of often-imagined illness that infested most of my childhood. But it’s been difficult for me to process everything that’s going on with a clear head and think of logical next steps to take. I feel those old impulses beginning to rise again, especially since there is a legitimate reason to worry.

The two major ways I got past my obsessive thoughts about illness were comparing the thoughts to reality and working to get past my fears of individual symptoms. It’s a process that’s worked out well for me over the years, but it seems completely ineffective against this new threat.

If I compare the negative thoughts that have been popping up in my head lately to reality, they don’t seem too far off. While something like “someone across the room sneezed, therefore I am going to catch a terrible disease” seems far-fetched in most circumstances, it could actually happen now. And the more I see people around me acting with extreme caution, the harder it is to justify keeping my normal routine.

Not to mention, coronavirus isn’t something I’ve encountered before. I’ve had enough fevers and chills, coughs and sneezes to figure out my best response. But with coronavirus, there’s the possibility of a hospital stay, which still terrifies me even after extensive therapy, and enough people have died that I’m not only worried for myself, but also for my elderly grandmother and the rest of my family and friends.

A resurgence of negative thoughts like this is not a problem I ever expected to face. When I went to college, I thought I had “beaten” OCD. I thought my battles were all over, considering the progress I made on the specific things that bothered me. I was reconciled to the things I thought I couldn’t change, and I thought my hard work and years of therapy meant I’d never have to face any challenges from OCD again.

I’ve since discovered, thanks to both major medical incidents and the flow of everyday life, that I haven’t “beaten” OCD. I live with it still, even though the way I live with it looks very different from how I used to. Sometimes, my old strategies work, and other times, I’m in a place like this where I have to feel things out from day to day and figure out new options.

At times like these, when everything around me is telling me to panic, it’s hard to see the progress that I’ve made. It’s even harder to find a balance between taking the necessary precautions to avoid catching coronavirus and not taking things too far.

Right now, I’m working on this strategy: I’m trying to slow things down in my head by limiting the articles I read and the conversations I get into about the virus. I do the CDC-recommended things to stay safe, like washing my hands before I eat and not touching my face, but I’m not doing anything more than what the CDC has specifically said. And if I do hear someone coughing, I try my best to breathe normally, then work with my usual distractions to move forward.

Some days are better than others. Sometimes, the headlines pile up and the alarmism catches up with me, and I have a hard time focusing on work or even video games. Other times, I do things pretty normally and swat away the near-constant interruptions of the virus. Ignoring the hysteria is possible sometimes; at other times, I need to seek reassurance from loved ones that my family and I are going to be okay.

Part of growing older with OCD means that I need to accept things like this, and see the victories where they come. I need to be proud that I can sometimes go a day without thinking about the virus, or ask for reassurance two or three times instead of a dozen. It means not hating myself for the fact that the thoughts still come, but instead, trying to see how much better I am at handling this now than I would have been as a child.

Celebrating my mental health while worrying about my physical health is always difficult, but I hope to find that happy medium. To all my readers, please stay safe, and know that even if you’re having a harder time staying calm, it’s normal, and it can pass, just like the virus itself.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

STORE-BOUGHT IS FINE

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Store-Bought Is Fine

I’m not the type to go around telling everyone that I’m on mental health medication, but when I lived with roommates, it was often something they’d notice. After all, it’s part of my routine that I do every single day, and have since I was a kid.

Sometimes, when people ask, and I tell them why I take these little green pills, they’re okay with it, shrug it off, or just look around awkwardly before changing the topic. But other times, I get blatantly negative reactions like “Why are you putting chemicals in your body?” or “Why can’t you work on this on your own?”

Unhealthy and weak is what I become in their eyes, and in a few cases, it became a regular topic of discussion. Sometimes, these people would show me some exercises or a certain type of oil supposed to cure whatever’s going on in my head. Other times, they reminded me that I wasn’t doing the right thing for my body (which, of course, is their decision to make).

All of this is why I was excited to see a new addition to one of my favorite booths at C2E2 last weekend.

If you haven’t heard of Giant Microbes, they’re little plushies of diseases, important cells in the body, and other things that might appear in the context of biology. I had a few at home before the con: white and red blood cells to commemorate my being on blood thinners; chicken pox, as that was the first disease I ever got; flu, as I get the flu vaccine; and Legionnaire’s disease, which Dad bought for me before DragonCon in response to a local outbreak.

At C2E2, I added a very important new molecule to the mix: serotonin.

When my first psychiatrist explained OCD to me, she told me about neurotransmitters like serotonin that could cause symptoms like mine if they were imbalanced. She told me the medicine she prescribed would help my body make serotonin to match what a neurotypical person might create, which would make my symptoms easier to fight off.

Notice that she didn’t say what my friend thought - my medication doesn’t eradicate my symptoms entirely and make my life “easy.” Instead, it helps me keep a lower level of anxiety on a day-to-day basis to help me prepare for spikes. It makes my negative thoughts feel like a swarm of ants instead of a swarm of bloodthirsty velociraptors. I still have to deal with them on my own, but the medicine keeps me afloat long enough to get that process started by reducing both the number and intensity of negative thoughts.

Misconceptions like this, as well as other reasons both connected to and separate from the stigma against mental illness in general, keep people from seeking help and getting medicine, if that’s what works for them. I am a firm believer that medicine works for me, and I wouldn’t be where I am today without medicine.

I’m not saying that medicine is the solution for everybody, or that it’s a cure-all for any condition. But I’ve fought the anti-medicine mentality in so many ways, including from friends spiraling into depression or unable to function in everyday life, but don’t want people to think they’re weak. And even worse, they feed into the idea themselves.

No one would call someone weak for needing crutches or a cane or a wheelchair to get around due to a physical condition. People were incredibly supportive when I got hurt recently, and am using a knee brace. But the idea of needing help to fight against your own head is scary to people, and that fits right in with the stigma against mental illness. It was why I was so excited to see the serotonin molecule sitting with the other plushies at the Giant Microbes stand, and why I bought it almost immediately.

The little serotonin plushie I bought at C2E2 has the correct shape of the molecule, as well as a cute little hat with a brain cell on it, as if it’s a tourist. I like the idea of my serotonin coming in as a tourist, bringing a fresh new perspective to my thoughts that cycle over and over. Just like a tourist who isn’t better or worse than any local people in an area, the serotonin my medicine gives me isn’t worse than “natural” serotonin.

And, as one of my favorite Pinterest images says, “if you can’t make your own neurotransmitters, store-bought is fine.”

It was refreshing to see a company like Giant Microbes treating serotonin, dopamine, and other brain chemicals as something normal, and my little serotonin molecule is now placed with its other microbe buddies on my shelf. It serves as a reminder for me that, just like with the physical health conditions I’ve fought my way through, I can win this fight against OCD, and it is a blessing rather than a shame that I can “adopt” serotonin from external sources.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

WHAT LIES INSIDE

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What Lies Inside

Last weekend, while playing Dungeons & Dragons, my group was enacting a scene where our characters were on board a ship in a storm, and many of them (including mine) were getting seasick. When we broke for dinner, I mentioned to one of my friends in the group that it was a little hard for me to play that scene, even though it was just listening to and making sounds like we were throwing up.

When he asked why, I didn’t hesitate to tell him something along the lines of, “I’ve been afraid of throwing up for a very long time, and since I have OCD, those thoughts can get stuck in my head.”

I wouldn’t ordinarily share something like this with just anyone, but considering I’ve known this guy for close to six months and my D&D group is getting very close considering we spend a full day every week together, I thought it was safe.

His instant response: “I couldn’t tell.”

My instant response: A sigh of relief, and “Thank you.”

I was taken aback by my response. As we kept talking, I felt so strange. Why had I responded so strongly to his remark that I would normally deem well-meaning yet insensitive?

Ever since college, I’ve been trying to turn around the notion in my head that there’s something wrong with me because of my diagnosis, some hurdle that makes people not want to be around me. I came to associate my lack of friends with visible compulsions that I used to do, like stepping in a sidewalk square an even number of times, running my fingers along walls, and spitting sideways when drinking out of a water fountain. I also talked nearly constantly and had difficulty telling when people were no longer interested.

Since these actions likely contributed to my lack of childhood friends, I associated OCD with loneliness. I was firmly convinced that anyone who knew I had OCD would never want to be friends with me, and so, in order to try to make friends, I would have to hide in plain sight.

I tried to avoid talking about things I am particularly interested in, so I wouldn’t run the risk of rambling. I lived my life like I had a great big secret and couldn’t get too close to anyone, or it would come out and they wouldn’t want to spend time with me anymore.

Even with my years of trying to reverse this lifestyle and these beliefs, I still find myself in moments like these, taking neurotypicality as a compliment and a sign that I’ve done well at hiding a large part of myself. This response was so ingrained that I didn’t even realize what I said until after the conversation moved on. It was like a reflex, a knee-jerk reaction to interpret being seen as “normal” as ideal.

And yet, the more I thought about it, I realized I hadn’t been acting very “normal” that session, even though I was making an effort thanks to a new player joining the group. When someone named his new character a very obscure Tolkien reference, I practically jumped across the table, exclaiming “I got it! I knew it was from the Silmarillion!”

My friend saw that - a clear expression of a reaction too big for someone neurotypical - and still wanted to be my friend. His words were meant to comfort me, to show that he understood why I was responding that way to the seasickness scene but also to show that it didn’t matter in the grand scheme of things.

He went on to say that he sees me as a passionate person with intense, but not strange, interests. He likes that I’m in the group, and knowing my diagnosis doesn’t change anything. I felt overwhelmed then, in an entirely different way, as he passed me the phone where we were all ordering food.

We were ordering food from a place where I feel comfortable eating, talking all about writing our various stories, and I couldn’t have been happier. Yes, I had that ingrained response in me, but as I looked around the room, I realized I was just as much a part of the group as anyone else, OCD and all. It wasn’t the big deal I imagined when I was little, and it felt great to learn that. I hope that one day, I’ve learned this lesson well enough that my first response isn’t relief and thanks, but for now, I’m going to add another observation to the ones I gleaned as a child:

 People living with mental illness can have friends!

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

HOW TO LOVE SOMEONE WITH OCD

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How To Love Someone With OCD

Although I was single this Valentine’s Day, I felt more loved than ever from my friends, family, and community. As someone who once thought my mental illness made me unloveable beyond my family who was “forced” to care, I was thrilled to have a busy week full of all different kinds of love, and it made me think about the types of love I experience in my life now rather than bemoaning that I don’t have the one most commonly celebrated on Valentine’s Day.

It got me thinking about the different ways to love someone living with mental illness. This can apply to love of all types - familial, romantic, friendship, and more - and as I brainstormed, I enjoyed that I could pick out specific examples of these types of love. It’s not a place I would have expected to be considering I moved to Chicago a little over a year ago and started over, but now that I’m here, I’m thrilled to share the types of love that have bolstered me in my own internal struggles.

First and foremost is the love of acceptance. Even if people aren’t talking about me specifically, when I hear conversation about mental illness, I tune in. If I hear tolerant language, I’m more willing to open up, both about my history and everyday things that have nothing to do with OCD. When I know that people don’t throw around words that demean people with any kind of mental illness, it shows me that that relationship is a safe space to be myself, even at times when I’m not stuck in my head.

Case in point: I’m still Facebook friends with the person who told me “I don’t care” when I tried to share some negative thoughts with her, but the only interactions we have are surface-level, and generally all about her. It’s hard for me to feel comfortable sharing anything at all when I know she doesn’t care when things really matter. On the other hand, I can start a text to someone who I’ve had positive interactions with in this way with “ack my brain is attacking again” and feel instantly comfortable diving into what’s wrong.

Love as demonstrated through acceptance is especially important in tough moments. The other day, when a friend in my D&D group saw that I was feeling overwhelmed, he offered me a hug. I couldn’t believe how much it helped and how good it felt to know that someone could see me acting anxious and get closer, rather than running away.

Sometimes, I need tough love. I need for my family and friends to push me out of my comfort zone, or else I might stagnate there. I need to be told if I’m doing something too annoying, even if it hurts me to hear it. I’m sure that kind of love is as hard to give as it is to receive, but it helps me learn how to conquer my fears and bad habits and move on to a more productive life.

I also need the love of inclusion, whether that means not minding if I bring my food to an event or going to a place I feel comfortable, or if I do something strange, not asking about it or staring. All my life, I’ve known these things are strange, and I beat myself up over it whenever I feel like I can’t do something “normal” enough to fit the situation. Thankfully, I’ve been doing this less lately, but I haven’t eradicated it entirely - and it helps to feel like I have a safety net of people who will support me even if I don’t feel able to conquer a hurdle at that very moment.

The love of true companionship - feeling like I’m not alone - comes into play when I hear other people’s experiences, even with something so simple as hearing that something “makes me anxious” without any specifics. When my improv class discusses our anxiety levels at different tasks, I feel the love of a community that accepts people who have fears.

An often-overlooked type of love I need is the love of my passions. The happiest moments in my life are when people ask me about a story I’m writing, book I’m reading, game I’m playing, or cosplay I’m making. When people want to hear about what makes me happy, even if that something is a positive obsession that they might not understand, it makes me feel like I am loved for who I truly am.

All of these forms of love can appear in any relationship, at any time. As I sit here writing this post, I’m smiling as I think of the ways my friends and family have loved me even when it’s difficult. On Valentine’s Day and every day, I want to make more of an effort to be grateful for the love in my life, and do my best to extend this love to others who I meet.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

WHAT WORKS FOR EVERYONE?

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What Works For Everyone?

Lately, I’ve been puzzling over a problem I keep encountering in my Pokemon Go group - namely, how to balance including people who display behaviors indicative of mental illness in group functions as well as ensuring the comfort of everyone present.

Here’s what’s been going on: A member of the group who’s been inactive for a long time (I’ll call him Caleb) recently began attending group things again, and even with me missing a lot of our meetups due to improv, I’ve been seeing him a lot. Most of these times, it’s not intentional on my part - he’ll show up right behind me, in my personal space, and explain that he’s followed me ever since he saw my colorful hat from a few blocks away. From there, he chatters away, awkward but excited, not realizing that it bothers me to be followed.

The idea of being followed, especially without knowing about it, by someone I barely know is disconcerting and creepy to me. One time, Caleb even added that he’d left his dinner at a nearby restaurant to follow me several blocks before he popped up right behind me, scaring me. I started trying to avoid him at all costs, and when he kept getting me alone (as I tend to show up early to meetups), I’d try to reach out to others for backup.

I’ve received two very different responses from people. In the beginning, people said that since he seems to display symptoms of mental illness, we should be kind no matter what. These people often refused to step between us, citing that Caleb needed to see unenthusiastic reactions like mine to help him learn social cues. Others said I don’t have a responsibility to enable behavior I’m uncomfortable with, and I’m fully within my rights to disengage from the conversation or even be mean, if I want.

My strategy has mainly turned to avoidance. I’ve tried to avoid being early to things to avoid being the only person nearby when he comes. I wear my hood over my hat so I can stay warm, but also not invite unwanted behavior. But I will still trade pokemon with him, even if it’s just the one daily trade you’re supposed to do when you run into someone on your friends list. I won’t reject him entirely, because I know how it feels.

I know what it means to be the person on the sidelines of social situations, recognizing that other people have an easy bond with each other and tense up when I get there. I know what it’s like to want so badly to be a part of things that I get as close as possible to the people involved, even though I know there’s still a barrier between us. And although it’s been a while since I’ve felt that way, I can understand how Caleb may be feeling, and I can’t make myself be like one of the people in my childhood whose intolerance prevented any form of kindness.

On the flip side, I’ve encountered some people who try to use other people’s kindness for their own purposes, like the friend I once had who used to say that sexually harassing women was the only way to make his depression feel better. It took me too long to realize he took things too far, and that isn’t an actual excuse, but where is the right place to draw the line?

Is it a numbers game, like how people’s responses began to change when more than one person said Caleb was following them? Does it depend on their behavior or the words they say? Is it based on how many times the incident in question happens, or the context of the specific events?

The other day, on my way back from my fantasy and sci-fi book club, I saw a few people trading through the window of Starbucks and came by to say hi. People were kind and welcoming to me, but part of me wondered if I’d done the same thing as Caleb and intruded where I wasn’t wanted. And in that situation, I thought back to something a friend of mine suggested when I asked for advice about Caleb.

She told me that the best way to get everyone on the same page was open communication. In his case, he might not realize he was doing something that made people uncomfortable, and he would probably appreciate a heads-up. Not to mention, knowing for sure that he knows what’s bothering people can give others a way to test his intentions afterwards.

As a kid, I would have loved more concrete feedback like this. I used to get it from my therapist after explaining my failed attempts at social interaction, but I never got it from the people themselves. Thanks to that lack of information, I often ended up confusing myself by overthinking things, which further distanced me from my peers.

I haven’t had a chance to talk to Caleb yet, but I hope I will soon. It’s a good way to be kind while still sticking up for myself and my own comfort, and it may help him figure out the social norms of the group better.

I’ve come to realize over the years that I can’t completely eradicate unwanted behaviors simply for the sake of fitting in. It’s up to the rest of the group to be tolerant of this, kind whenever possible, and willing to compromise, but it’s also up to me to learn how to not make people uncomfortable. If both sides are willing to give and receive feedback, I think it can be a wonderful learning experience for everyone, plus a great way to help people who may not have experienced positive friendships before.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.