Some Wounds Don't Heal

Some Wounds Don’t Heal

Have you ever had a cut with a scab that stays on forever, and just when you think it’s ready to be peeled off, the cut reopens and you have to start all over again?

That’s how I feel every time someone tells me I’m “too much.”

I was taught, as a child, that because of the way my brain works, I will always be “too much” for most people. I knew, deep down, that even my family needed breaks from my energy, enthusiasm, and obsessions - and since I didn’t have friends, they were my barometer for how the world would treat me.

It was because of kindness that they encouraged me to take up less space, took me to therapy where I learned how to blend in, and inadvertently ingrained into my head that I can never fully be myself with anyone.

After many sessions with my child psychologist, I felt bad to inflict myself upon people - even my family. I became resentful that there was no room for the one coping mechanism for my OCD that actually works - choosing to obsess about something positive instead of something negative. I hate that in my childhood I was always bursting with energy and joy and positive obsessions and when they had nowhere to go, I shoved them down and down and down until, even now, they only pop out in specific circumstances when I feel safe from rejection.

These little moments feel so liberating, but they are rare. I try so hard to fit in, but inside, I’m screaming for the chance for my heart and passions to be let out. I’m frustrated that people can casually say “I’m so obsessed with this TV show/movie/band” but if I try the same thing, it’s weird and strange and makes people uncomfortable.

People tell me this in a variety of ways. A friend once told me - after she witnessed me and another friend exchanging Lord of the Rings-related puns - that she felt like I was intimidatingly smart and wouldn’t want to associate with anyone who didn’t get the jokes. At work, I’m told to branch out my topics of conversation even if I don’t know about those topics, and when I fall back on my usual MO of being quiet when I don’t have anything to say, I’m too meek or shy. And recently, my DM for D&D told me I was taking up too much space with roleplay.

My current therapist tells me that it’s about other people, not me - if they are uncomfortable and don’t have a way to deal with their feelings, they pin it on me. But I don’t believe her, even though I trust her with almost everything else. I don’t think so many people could be wrong, and after a lifetime of hearing it, I’ve grown to accept that my passionate, energetic, enthusiastic, obsessed self is something to hide and be ashamed of.

When I hear the words “too much,” it’s like flipping a switch. If I was comfortable with the person who told me this, I am no longer comfortable. I no longer want to share what matters to me, whether that means the big things or the little things. I feel an urge to “maliciously comply” with what they say - like if I am told I talk too much, I want to never open my mouth again around them.

And so, when I heard from my DM last week, I wondered what to do about D&D since it is one of my favorite activities. I thought of so many ways I could stand up for myself, and then used none of them, since I was told so many times as a child that my social skills are bad enough that if someone tells me I’m “too much,” they’re right.

And so, I stayed quiet. It was a roleplay-heavy session - one practically designed for me - and I only spoke when absolutely required. My lack of participation forced the person in the group who doesn’t like roleplay into center stage, and with a character not designed for that, he struggled. I let myself have the one petty moment of “Oh yeah, my +18 in Persuasion (one of the main dialogue skills in D&D) would have helped here,” before I returned to my silence. But in the end, I think the only one who was hurting was me.

And the worst part was, no one thought to say or do anything about the fact that the usually friendly and chatty Ellie was imitating a mannequin. I was listening to the feedback. Being a good girl who does what I’m told, and there’s no need to comment on that, no matter how much it hurt me.

I don’t like lashing out when I’m hurt. I don’t like that I have this big, blaring button on my chest that keeps getting pushed no matter how hard I try to blend in and act “normal.” I don’t like that I befriend people who support me to a point, then tell me I’m “too much” and reinforce that the only person who really wants to care about me 100% of the time is me.

I have some bright spots on the horizon - conventions, certain online meetups, and a trip to New Zealand in nine months that I’ve wanted to go on since I was in high school. In these places, I don’t have to mask at all. Everyone is either interested in the things I care about to the same degree as I am or find my enthusiasm an asset.

But whenever I let my guard down in regular circumstances, and I’m told that I’m “too much,” this is what goes through my head: You’re just as bad at hiding your OCD as when you were a kid. You’re doing it wrong. No one wants to see the real you. Why would you think you could trust these people?

When I think like this, I try to remember the quote I have pinned to the wall of my cubicle, from Danielle Laporte:

“You will always be too much for something for someone: too big, too loud, too soft, too edgy. If you round out your edges, you lose your edge. Apologize for mistakes. Apologize for unintentionally hurting someone - profusely. But don’t apologize for being who you are.”

When I look at this quote, I feel a scab begin to form on that ancient cut once more. One day, I hope I will get to a place where the scab won’t just rip off again, painfully. One day, I hope I can be in a situation where being myself fully is no longer a bad thing, and I can finally, actually heal.

Ellie, a writer in the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

Bringing A Fishing Pole To A Sword Fight

Bringing A Fishing Pole To A Sword Fight

For me, one of the major ways OCD has always manifested itself is perfectionism. Everything has to be done in the right way, and if I’m too far away from what I consider the right way, I start to feel anxious. This feeling tends to compound itself in group settings, especially since I’ve felt the need to make friends by impressing people since I was a child and “normal” friend-making techniques didn’t exactly work.

So, I was all the more stressed out when, this week, I had to deal with a situation where I made a mistake in front of a group of new friends who I was definitely trying to impress.

During a “raid” in Lord of the Rings Online, one of my favorite video games for the last decade, players work together as a group to do an objective (usually a fantasy-style fight). In this particular raid, I was in a group of six people working to battle a dragon and reclaim its hoard.

It’s a tough battle, and as the newest person in this well-established group, I really wanted to prove myself. I knew that most - if not all - of the other people in the raid had been playing even longer than me and several played more competitively. I wanted to prove that I was worthy of having a spot in the group - after all, they were letting me in when they could probably find players with a lot more experience in raids who would be a better asset to the group.

In other words, my old childhood mindset of “they could have done better - but I have to prove them wrong” came in, and I set out to be the best raid participant they could ever ask for.

The beginning portion of the raid went smoothly, but when we were preparing to fight the dragon, I decided to take a look at my weapons once again, to make sure everything was okay. It’s not something I needed to do - in fact, it’s more like how I check that I have my keys at least twice before I leave my apartment most days. And yet, I did it anyway.

It took until the fight started to realize that when I was checking my sword, I had accidentally clicked on a fishing rod in my character’s inventory, which made my character pick that up instead of her sword. And, thanks to the way this game works, I would be unable to change the “weapon” I had equipped for the duration of the fight.

I was immediately mortified. My first raid with these new people who had welcomed me even though I was definitely not on their level was going to be a disaster - and all because of my need to check once again that I had equipped the correct sword.

As soon as the fight began, I spluttered to the group in our voice chat that I had messed up and that the group would essentially be doing the raid with five people instead of six. I apologized, did my best to explain what had happened, and fully expected to be kicked out of this new group where I didn’t even know the people all that well.

But instead of the hatred I expected, all I received was uproarious laughter. Not at me - at the circumstance of the game and the way it wouldn’t let me change the fishing rod for a sword! The whole conversation turned jovial and we all got a great laugh as I cheered from the sidelines, waving my fishing rod, watching as the five people in the group who were far better equipped than me brought down the dragon.

It took longer to complete the raid than if I hadn’t been holding a fishing rod the entire time, but it wasn’t that big of a difference. Everyone was still able to work together and the more serious group members enjoyed the challenge of bringing down the dragon with fewer people. And, at the end of the night, the group leader explained that it was their tradition to take a screenshot of the raid group with the prize - and they wanted me to stand in front and wave the fishing rod.

What started out as a mistake turned into people telling me that I made their night by bringing humor into a usually serious situation. They told me that I was welcome in any raids they do, and while it might be more helpful to bring a sword in the future, it was hilarious that I wielded a fighting rod against a dragon in my first raid with the group.

As the anxiety of making people hate me faded away, I thought back to how I joined this group, not so long ago. The reason I felt so comfortable joining was that the leader welcomed me when I was having trouble in a different raid - even going so far as to send me a message of encouragement when I was stressing about doing everything right.

In the end, no one actually cared about the fact that I brought a fishing rod to a sword fight - and no amount of preparation or worry could have taken away the silly mistake I made. It’s now turned into a joke within the group, the first “inside joke” I’ve been part of - and it makes me feel welcomed in a situation where my anxiety could have led to a far worse outcome.

 Ellie, a writer in the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

What Trying A New Food Looks Like

It’s a Friday night and I’ve just won a Magic: The Gathering card game draft, which is a tournament among eight people. I’m proud of myself - it’s been six years since I picked up the hobby, and I’ve never managed to win a draft before. My confidence in my performance at the event makes me giddy, reckless enough to agree to go out to dinner with some friends from the event.

The idea occurs to me, as I sit in the back seat of their car, that I don’t know where we would be eating, nor do these friends know about my… unusual eating habits. A polite way, I tell myself, of saying that I eat like a 5’9” toddler thanks to being afraid to try new foods for the majority of my life. The anxiety and obsessive thoughts that prevented me from trying new foods as a child are still there, albeit better hidden (most of the time).

It’s a few minutes past 10 PM, which means most places are closed. We look at a few places I’ve eaten at before, then my friends get the idea that we should go to a nearby Indian place that’s open. Some of the joy of victory slides away from me as I hope that I can be brave enough to try something that will let me keep my pride in front of my new friends.

I think of what usually happens when I don’t. If I just get a side dish or something plain, I get well-meaning but horribly obtrusive questions about my diet, weight, and lifestyle. I feel inadequate when I am asked these questions. Like somehow, even my best effort over the course of over twenty-five years has amounted to me eating a less varied diet than a grade-schooler. It’s a reminder of the roadblock between me and “normal,” even if friends, family, and therapists alike tell me I give too much meaning to that word.

I enter the restaurant anyway and check out the menu handed to me. It’s a pretty big menu, which is a good thing - higher odds I’ll find something I can eat. The sides appeal to me right away - I know I like naan bread and plain rice, but my friends are ordering proper dishes, and I feel ashamed. Somehow, the fear and the remaining joy from winning the draft combine, and I decide to try a new food.

I’ve never had chow mein before, but from the picture in the menu, it looks like it has noodles and onions. I can see from the allergen list that it won’t kill me. I can only pray that my childhood fear of any new food making me throw up is an obsession and nothing more. It’s a gamble, but I order and pay and sit down with my friends like nothing’s wrong. For a while, I live in the bliss of bravery as the food is prepared, not having to eat anything - but soon enough, the food shows up, and it sits there.

I notice immediately that the noodles are very skinny, much slimmer than I had expected. That is the first detail of many that throws me off. I’m used to a different restaurant, a different dish, a different everything. But I do recognize the onions, and force myself to pay attention to that.

My therapist tells me to pay attention to sensory details like this when I’m about to get caught up in my head, and in this instance, it works. It pulls me back to the conversation, which is still about the cards and the draft and the games we played and the games we hope to play in the future. I twirl the noodles around a plastic fork and pretend it’s lo mein or spaghetti marinara. I hesitantly take a bite.

It’s taken years to get to the point where I can do that - and it feels like a huge step to chew, acknowledge the mysterious spices in the noodles that I am utterly unfamiliar with, and swallow. I then look down, the portion seeming monstrously huge as I know each bite will be its own challenge. Nevertheless, I continue.

I gain a little more confidence as I eat more. I’m eating a new food, I realize, and it’s not killing me or hurting me in any way. The negative thoughts were wrong, as they usually are. I have the proof before me tonight - but at the same time, I know that eating a small portion of a new food is not going to make the next experience less scary. I will still have the ingrained fears. I will still need to use therapeutic techniques and positive memories to get through.

And yet, I will. I may not try new foods often, since this ordeal is something I prefer to avoid if possible, but the option of trying new foods has enabled me to participate in more social opportunities than I would otherwise have. It may be a fight every time, but it’s worth fighting to take yet another step on my road to healthy thoughts and eating habits.

Ellie, a writer in the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

It Came Just The Same

It Came Just The Same

As soon as I saw the second line show up on my COVID test, I felt an inescapable sense of dread. After all, I’d spent two years trying to avoid getting sick - and here was the irrefutable evidence that something bad was going to happen to me.

I already knew I wouldn’t be asymptomatic, because I woke up with a very sore throat and a fever. What I didn’t know was whether I would get severe enough to have to go to the hospital, something I knew would push me out of control in my head.

Ever since my first (and extraordinarily unpleasant) hospital experience nearly ten years ago, I have developed coping mechanisms for anything that could bring me there - and that brings me a sense of control over a situation I feel powerless to fight against. I know which distractions to bring, which medical papers I need, and which people to call to come help.

But the problem with COVID is that no one can come over to help. Whether or not I needed to go to the hospital, there was one unavoidable thing I was afraid of: being alone.

I got angry at my therapist when she suggested I take a COVID test, even though I felt sick, because I was in denial. I didn’t want to face the situation I was afraid of, no matter what that meant. I wanted to pretend that everything was normal even when it felt like the world was falling down around me. I wanted to be the same girl who, nearly ten years ago, went to class instead of going to the hospital when I had a blood clot.

I was so deep in denial that even when I caught a glimpse of the second line on the COVID test signifying a positive result shortly before the timer was up, I convinced myself that the line would go away by the time I was supposed to look at it.

But in the end, I had to face it. None of my denial or distraction could stop the virus from coming. I couldn’t help but think of a moment from “How The Grinch Stole Christmas,” one of my mom’s favorite cartoon movies: “He hadn't stopped Christmas from coming! It came! Somehow or other, it came just the same!”

And once it came, there was nothing I could control or change. I just had to settle in with lots of beverages and soup and prepare for whatever happened.

As things turned out, I was feeling too sick for the first two days to stress too much. I couldn’t talk much, and between my sore throat and fever, I had plenty of things to concentrate on besides anxiety.

As I got better, I started to actually have to face the illness head-on. I spoke with my internist, used medical equipment, and started to accept that everything was real. I even started to pack a bag for the hospital when I used my brand-new pulse oximeter machine incorrectly and it displayed an oxygen level of 94.

In the end, thankfully, I didn’t need to do anything like that. After the third day, my symptoms improved day by day. Even if it was only a tiny improvement, I took heart in that and felt encouraged that the worst was over. And, about a week after I first showed symptoms, I was feeling like myself again. Another few days (I followed the CDC’s guidelines religiously), I was able to leave the house; now, I’m resettling into the rhythm of my life.

Looking back on the week, I can’t believe several things. First of all, I only panicked once - the moment I saw the positive test for the first time. I know part of this is because I wasn’t feeling well, but still, my friends and family were pleasantly surprised at how much my therapist’s advice helped me, that I didn’t fly off the handle.

I was also pleasantly surprised at how many people stepped up to offer companionship (virtually), food, and various other kinds of help when I wasn’t feeling well. As someone who grew up without many friends, I felt like I was part of a loving community and that the help I often give to others was coming back to me.

It’s also hard to believe that I was able to face the truth that I was in a situation that scared me a great deal instead of pretending it wasn’t real. As someone who would prefer to be imagining a fantasy universe instead of living in the real world, the fact that I could live in the moment in a situation I’d built up in my head to be a terrifying thing for the last two years showed me that I can, in fact, be strong in the face of sickness - no matter what my childhood germaphobia would have me believe.

Ellie, a writer in the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

The First Time In Forever

TW: Blood

I vividly remember one of my worst memories from when I had my blood clot nearly ten years ago: I had requested a bedpan, so Mom and Dad left the room. Just as soon as the nurse finished setting me up, she left too - and that was when I jerked up at the waist and coughed a slick, cherry-red blood clot into my left hand. It was the size of a half-dollar coin, and somehow, between my lifelong emetophobia and new fear of blood, it was the most terrifying thing I could possibly imagine.

I remember trying to convince myself to breathe long enough to go to the bathroom. I remember how the nurse didn’t seem to care at all as she helped me get off the bedpan and back in bed. And I remember how Mom, who had been trying to hold things together when I was in the hospital, rushed in when she saw the look on my face and heard my sobs as I finally let loose everything I was feeling.

Ever since that day, I feared that I would have another recurrence of this incident. I knew that it was due to the medication I was taking at the time - t-PA, a drug so powerful that I had to be in the ICU to receive it - but still, I feared that somehow, my blood thinners would make it happen again.

It became the demon of many of my horror stories, the one thing I couldn’t watch on TV, the most horrifying intersection of my fears that I couldn’t get out of my head. It was etched so deeply in there that I figured I would always remember the feel of it in my hand, the way some of the blood ran in the lines of my palm, the pit in my stomach as I thought it was the beginning of the end of my life.

I’m grateful that it didn’t happen again when I shoved my feelings and fears under the rug for years, ignoring my trauma until I couldn’t anymore. I’m grateful that it didn’t happen again when I graduated college, or went to grad school, or moved to small-town Pennsylvania, or moved to Chicago. I’m grateful that it at least waited until six weeks after my dog died, as I’ve been starting to feel stronger.

I needed that strength when, after a particularly unpleasant projectile nosebleed, I felt the urge to cough and I felt a clot, just as slippery and bright red, fall out of my mouth and into the sink.

I was on the phone with Mom, and had been ever since I sneezed blood so hard across my laptop that it took a significant amount of effort to clean up. With no provocation, my nose had been bleeding for about fifteen minutes. I knew to tilt my head forward, to keep the blood from flowing down the back of my throat, but as it turned out, I must have missed some.

Never before have I had anything like this from a nosebleed, even the somewhat explosive ones I started to get after I first went on blood thinners. And in that moment, even though it had been nine years and ten months since I last coughed up blood, all I could see was the ICU room once again.

Thankfully, it’s been years since I experienced invasive flashbacks, but I couldn’t help it at that moment. I remembered the details, every terrifying one, and somehow I couldn’t tear my eyes away from the clot as it stuck to the side of my sink. It was the size of one of my fingernails. It was just sitting there, a nightmare come true.

Here, in my own apartment, no one else was going to clean it up. I blubbered to Mom what had happened while I sprayed water at it, eventually making it go down the drain. My tongue was a bloody red, my teeth tasted like copper, and even when I started spitting into the sink repeatedly, the saliva kept coming up red, and no amount of reassurance was enough to convince me that it was over.

Just like when I was in the hospital so long ago, my heart was pounding, and my trauma felt as immediate as if it had just happened for the first time. But luckily, I had far more resources. I texted a few friends, all of whom immediately called and asked if there was anything they could do to help. I decided to put my to-do list aside for the afternoon and practice self-care, which I don’t do often, but it helped me find my equilibrium. I was able to stop the building panic attack from actually happening, and thanks to some especially helpful texts from my therapist, D., I started to feel like I had done something brave.

Instead of this fear only existing in stories or on TV, I had witnessed it, while being alone in my apartment, and knew what to do. I was no longer the helpless nineteen-year-old thinking about how she’d never hit twenty or get kissed. I’m ten years older, a lot more experienced with my brain and how my OCD can fixate on trauma, and I know what to do.

It didn’t help much when, later that night, I had another nosebleed - and another the following day. I’m still half-convinced it’ll happen again, but now, I have an example of a time blood has come out of my mouth and I’ve been totally fine. No hospitals, only a phone call to my hematologist (who did say I should get checked out if I had a nosebleed for more than fifteen minutes, but I fudged the time a little to get out of it). Aside from the moment when I leaped ten years in the past uncontrollably at the sight of a blood clot coming out of my mouth, I stayed in the present, used all sorts of techniques from therapy - and now, a few days later, I can say that I’m feeling okay.

I never thought I would be able to deal with something like this related to my traumatic medical experience and not spiral out of control. It’s just like how, when I was a kid, I never thought I could have a life where OCD doesn’t control everything I do. I’m proud that I’ve reached this point, and hopefully, the next time I inevitably have a “first time” related to trauma, I can remember this lesson and carry on being strong.

 

Ellie, a writer in the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.