Choosing Kindness

Choosing Kindness

TW: Trauma, medical imagery

A few days ago, I was on my way to visit a friend in his new apartment when he texted me that our mutual acquaintance Adam (name changed for privacy) would also be there.

I’m going to be honest - I almost turned around and went back to my place. I almost found some excuse to get me out of seeing someone who I had once been close friends with, but after a series of remarks where he belittled people living with mental illness and said that the reason I was able to have friends is because I “trained” myself (almost like an unruly dog), I distanced myself from him.

And yet, I couldn’t say, on the stairs of my friend’s building, that something had come up. It would be too fishy, too offensive to my friend who has been nothing but kind to me. There was nothing I could do besides finish my trek upstairs and reunite with two people who I hadn’t seen in a very long time - my friend and Adam.

I was hardly inside the doorframe when Adam, who was sitting on the couch, said, “Ellie, we’re blood thinners buddies now.”

I was surprised to hear this - after all, it was a long time since we’d been close enough for me to share any details of my past with him, let alone something so private and personal. I would especially be wary with someone who seemed to disrespect people with any mental illness whatsoever. But my curiosity won me over as I remembered how, immediately after my blood clot (and if I’m being honest, for months afterwards), I felt the irresistible need to bring what I’d experienced into every conversation. It was as if there could never be anything more important in the entire world.

“Tell me about it,” I said, sitting down across from him on a squishy chair with a lovely pillow. And he did - he launched into his story immediately, and from the way the words flew out of his mouth and yet sounded extremely rehearsed, I could tell I was far from the first person he’d told every sordid detail of his story to. His story was different from mine - a heart attack and a single stent in the heart rather than a blood clot and three stents in the leg - but he said that he, like me, is now on blood thinners for life. He was disappointed when he asked me which medication I was on and the exact medicine didn’t match.

I recognized exactly what he was doing right away. In the days and weeks after my blood clot, I tried to think of some way - any way - to connect with people again. I felt like I was seeing life through a different lens, seeing an underbelly to my world that I never knew, and I, more than anything, wanted to find someone who could share my world with me.

But what really sealed the deal that we had shared more than a physical experience was the way he ended his story: Ever since then, he’d been feeling heart palpitations without medical reasons, extreme anxiety, and dizziness.

And just like that, we could have been talking about September 19 of my junior year of college - a date I remember because it was Talk Like A Pirate Day and everyone was going to dress up in one of my classes. But I didn’t think I’d make it to class, because I was so dizzy and anxious and my heart was fluttering so fast I thought it would pop right out of my chest.

His words flew out of him in a rush, just like mine did then, and in the long days and weeks and months after. It took me almost a year to finish my cognitive behavioral therapy and start to feel like myself again. And he looked exactly like I had felt - pale, skittish, and most telling of all, checking his heart rhythm on his smartwatch a little too regularly.

I almost forgot that I was coming to my friend’s apartment to trade pokemon when Adam and I really got talking. He explained that he didn’t have good pokemon to trade because he had barely left his apartment in months, and not for COVID reasons. He was afraid of things he’d never been afraid of before. He wasn’t eating or sleeping well. And whenever he talked about anything at all, he kept going back to the three days he’d spent in the hospital and how close he’d come to dying.

For me, it was five days plus part of a sixth (a detail I’m proud to say I had to check my Facebook posts from 2012 to remember). I, too, felt very close to dying, especially the first night, and remember that when I came out of the hospital and everyone was acting normally, it felt like I was in the wrong world.

Adam looked to me then - the only person he knew with a similar experience - for what to do. And right away, I remembered what he had said to me shortly before the pandemic started, when I had asked why it was okay to bully someone who showed more overt symptoms of mental illness than me. I remembered him telling me that I was a “good example” because I had issues but kept them hidden. I remember he gave me “feedback” about which things I talked about too much that stayed in my head for far too long.

Part of me, right away, wanted to leave him in that headspace. Wanted him to realize that, like it or not, he is one of those people now, seeing a therapist and taking medication and learning how to live in a world that feels entirely different. Part of me wanted to leave him in that place of being mentally ill and not knowing what to do about it because he had scorned what I and a close friend of mine had gone through before.

But I couldn’t do it. No matter what he had said or done in the past, I looked into his eyes as he took a rapid-acting anxiety pill and saw the exact same pain I’d been in and the way so many people had turned away from me.

For me, the pain took two years to fully manifest. I tried to shove every emotion I was feeling as far away from me as possible. I knelt on my injured knee in a college dance festival two weeks after I got out of the hospital, when I still had a lot of pain, because I was going to force my world to be normal even if I couldn’t actually make it feel that way.

But when I finally faced it, I was just like Adam - afraid, unsure, and wishing more than anything for a friend. I’d done a pretty good job of making friends in college, I thought, until I started displaying overt symptoms of mental illness. And then my friends dwindled down to one person who helped me get out of bed in the mornings, coached me through eating when I couldn’t stand the thought of it, and was there for me when I went through the months of therapy and medication changes that got me back to normal.

It’s been seven years since then, but I still remember how alone I felt. How I just needed a little understanding and sympathy from people. How I needed them to believe that, even though I wasn’t acting or feeling like myself, that there was a good life out there for me if I fought hard enough for it. And I needed their help to fight.

And so, I decided to be kind. I told him about the different medications I’d tried and the therapeutic techniques I learned. I told him that I had a nervous breakdown after my blood clot - something I admit to as few people as possible - and that, seven years later, I’m doing better than I could ever have imagined. I told him how I used to jump at every twinge of any feeling in my left leg and wiggled my toes until they ached to prevent more blood clots. I told him about the panic attacks, the fear of nothing ever being normal again, and my misheld belief that living on blood thinners could never be a good life. I told him everything.

And even though it is a sordid tale, he perked up. He engaged more fully with my friend and I. We traded some pokemon, and he started to make jokes. I’ve never particularly liked his jokes - I find them distasteful - but he was out of his apartment, with two friends, and managed to make a couple of jokes. I’d learned the hard way that it was those tiny stepping stones that paved the road to feeling whole again.

After he made those remarks to me almost a year and a half ago, I never imagined that we would be able to have an honest conversation like this about mental illness. I’d written him off as someone who would never care. But now that he was in the position to see things all too clearly, he was in a prime position to understand.

Now is not the time to bring up past hurts, to say that he treated people how he absolutely would not want to be treated. After all, his symptoms are extremely overt, from the way he talks to the way he looks to the way he takes his pills right out in the open. Now, when he is in an immediate crisis, is not the time for learning.

But I wonder if, sometime in the future, when his world is starting to feel normal again, if he will reconsider the way he thought about people with overtly-displayed mental illnesses. If he’ll remember the kindness he needed and got, and will pass it on to other people in what I believe is the best way to change the stigma against mental illness for good.

 

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

When I'm Not Inflicting

When I’m Not Inflicting

One of the many things I learned from my child therapist as a little girl was that people were not nearly as interested in my hobbies as I was, and I should be polite and not inflict my interests on other people - especially with my typical intensity.

I learned many strategies to hide the depth and breadth of my interests - how to have a “normal” conversation, how to suppress the level of exuberance I was feeling about whatever book or movie or fandom captured my heart, and how to temper my reactions to seeing or hearing about these things to not seem “weird.”

It’s worked over the years, but a few days ago, I experienced one of my favorite things - when I can talk openly and obsessively about the things I love the most without feeling like I’m burdening anyone or inflicting my passion upon them.

It started when I saw the art prompts for this year’s Tolkien Reverse Summer Bang (TRSB). This is my fourth year participating in this challenge, where artists create various forms of art relating to anything written by Tolkien, and then writers match themselves up with a piece of art and write a minimum 5,000 word story inspired by the piece of art.

There were over 200 pieces of art assembled in the Powerpoint, but one of them instantly caught my eye. It was the perfect mix of angst and sweetness, upsetting things and familial love. It had a significant mental health angle and characters I have loved for years. It was inspired by the Silmarillion - my favorite of Tolkien’s works - and was so beautiful I nearly cried when I saw it. Even though there was a week between when the Powerpoint was released and when writers could claim a piece of art, my interest never dwindled and I spent many hours imagining what this story could be.

The release of prompts to the writers tends to be very competitive, and when there was an error with the Google form accepting my response, my typing skills came to the rescue as I was able to type the entire form a second time within the first 38 seconds of it being released - and I claimed the piece of art that captivated me the most. I couldn’t wait to start writing!

But first, I had to connect with the artist. I reached out, not sharing any of my ideas in-depth, and was surprised to get a nearly-instant response. We started emailing each other, then I asked if instant messaging on Discord might be a better option for a longer conversation. When we moved onto Discord, she asked if I minded her sharing a “wall of text” about the elves in her beautiful painting.

I said I didn’t mind, and would enjoy seeing her ideas. She sent me a big list, and then asked me if I’d feel comfortable sharing some of my own.

In other words, she asked me - of all people - if I was comfortable talking about Tolkien’s elves. As if I could say anything other than yes!

Sure, it’s likely that someone who paints pictures of elves from the Silmarillion won’t mind talking about Tolkien’s world with me, but I have gotten so used to downplaying my passions that I was floored. Someone actually wanted to listen to me of their own free will? Someone actually cared enough about my passions that I wouldn’t feel like an asshole for making them listen to something I know they don’t like?

Long story short, I responded with a dozen of my Tolkien-related cosplay photos and a full page of ideas I had for the story. And it turned into a beautiful conversation where we could both say literally everything on our minds and not be perceived as weird, obsessive, too interested, or anything else so many people in my life have told me to avoid.

It’s not that I don’t understand the other side - it can be “too much” to listen to people talking about their passions for hours on end. But as someone told that obsessions are bad no matter what they are, even the ones that bring me great joy also bring me great shame. I don’t think it’s right to blabber on about my favorite things to everyone in earshot. But hiding things like this over the years has turned it into such a special experience when I get to share my passions and not feel guilty.

When I’m not inflicting, when the other person finds the topics I focus on equally addicting, I find such a rare thrill that makes me feel appreciated, valid, and worth being listened to. It’s one of my favorite feelings, and in the absence of conventions - where these conversations happen often - it was amazing to experience the feeling and make a new friend who I don’t need to censor myself around. With the two of us working together, I can’t help but feel that this might be my best TRSB story yet!

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

Adjusting

Adjusting

I’m writing this blog at the end of my first week back in Chicago after six months spent at home, living with my parents and dog, and not far from Nana. And let’s just say the transition hasn’t been easy.

As someone who struggles with change at the best of times, I was especially nervous about how I would process coming back after so long. True, I’d done the same return trip for a few months over the summer, but I knew I would be going back for another extended stay sooner rather than later, and I had already decided that getting a dog would be my coping mechanism.

This time, it was a permanent return, and although I prepared several coping mechanisms - working on a new novel as part of a writing class I’m taking, learning how to play a musical instrument for the first time since childhood, training to become a Dungeon Master in Dungeons & Dragons, and trading the pokemon I’d caught while I was away with my friends who play Pokemon Go - it still left a lot of time for me to be alone.

This week, I found myself going outside about as much as humanly possible, walking 7-10 miles a day. On these walks, I could see other people, even if I didn’t talk to them, and I didn’t feel quite so alone as I did settling back in to my apartment. I’d really gotten used to having company around whenever I wanted people (or my dog, whenever I was in a canine mood), so it felt so strange to go back to living alone.

Living by myself for the first time in so long means that the routine I’d been following with my family was gone, and with all the freedom to do what I wanted when I wanted, I felt even weirder. The need to see other people hit me hard, and since I’m over two weeks past my vaccination, I started to make plans immediately.

Some things worked out, and others didn’t. But I really got my heart set on meeting with a friend who I hadn’t seen since October, and although I remembered that she was often very flaky with plans, I was unprepared for the wave of emotions that would rush over me when she canceled our plans.

I should have known that this would happen, based on past history. And yet, I couldn’t help but cry as I felt like I was doing everything in my control to help ensure a positive return experience, and there was so little I could actually control.

After living with OCD for so long, I have realized that controlling my environment to the best of my ability is the best way to stay on an even keel. But at times like this, times of major transition when it seems like nothing in the world is normal and I’m suddenly thrust into a new routine in a place I haven’t even seen in months, it feels very overwhelming.

In the end, I decided to try to be kind to myself. I dressed in warm fuzzy pajamas, enjoyed a takeout dinner from one of my old favorite restaurants, and tried to enjoy what was in my apartment instead of running away. I went through my old favorite books, rediscovered just how comfy my “comfy chair” is, and played a relaxing Nintendo Switch game on my TV.

This relaxing evening didn’t fix all the worries I’ve been dealing with since I came back, but it did help me find my footing. It occurred to me that trying to rush feeling back to normal wasn’t actually going to make me feel better any faster, and no matter how many new activities I try, it’s going to take time to get used to living alone in Chicago again.

So yes, there have been tears, frustrating moments, and far too many footsteps. But I hope that, as more time goes by, I can continue to take steps to feel adjusted in healthier ways.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

VACCINATED

Vaccinated

I’d never been so excited to have a needle in my arm.

But I was so thrilled the night before I got my first shot of Pfizer that I barely slept. I couldn’t wait to go to the convention center, even though there wasn’t going to be a convention there, to get my shot along with my dad as soon as our state opened up to 16+.

The process ended up being easy – we were in and out very quickly, and I received a “I got my Fauci ouchie” sticker to show off. It was an easy process, and the same was true when I came back three weeks later for my second shot. My only side effect was fatigue the next day, but I was still able to stay awake for Dungeons & Dragons that night after a hot fudge sundae.

As excited as I was to get vaccinated, things started to feel weird once I got my second shot. I heard so many opinions from so many people about where and when I should wear a mask; whether I should be allowed to do things like eat outdoors or indoors at a restaurant, see a movie, and hang out inside one of my favorite stores; or return to Chicago.

Now that I’m several weeks after my second shot, I’m doing my best to figure out what the “new normal” looks like. I have many contrasting desires – safety for myself and others comes first, but I am also missing things like gathering with friends, attending events at my local game store, and, of course, giant conventions with thousands of people.

The conventions are likely going to have to wait a while (although I’m holding out hope for Chicago Comic and Entertainment Expo in December), but the other things are a lot more ambiguous. I’ve found myself wondering what’s safe for me to do with my vaccinated friends, and these decisions are a lot more relevant now that I have returned to Chicago

When I was with my parents, I had social contact every day even without leaving the house, but now, if I want to have social contact in person, it’s up to me to decide what’s safe. This has been somewhat anxiety-provoking, a phenomenon many people are experiencing right now.

I’ve heard it called “re-entry anxiety,” and for me, it set in once the immediate worry of catching COVID-19 or spreading it to an unvaccinated family member dissipated. Once my family was vaccinated – and I was the last one – some old fears of change started creeping in.

I’ve never been good at change, and no matter how much I miss certain things, it was hard for me to come to the decision to leave my family and go back to Chicago. I felt torn between being used to daily in-person socialization and missing my independence and my friends. I ended up compromising, waiting a little while after I got vaccinated to go back, and now as I settle back in, I am trying to figure out how to balance these needs in a new world.

Normally, when I go back to living alone after an extended visit with family, I try to take very good care of my emotional needs by making a lot of plans. I’ve tried to do that virtually this time, but after living with my family for longer than I’ve done since I left for college, I still feel strange to be by myself and create my own routine. It’s something I’ve done before, but not in a world like this, and with uncertainty comes anxiety.

When I prepared for coming back, I made my best effort to make as many virtual plans as possible – three events in the first weekend alone. But that’s not sustainable for every weekend, and it falls to me to figure out how to create a balance between my usual routine and what makes sense for these new times.

It’s hard for me to not have even a vague idea of what the world or even just my everyday routine will look like, because I’m normally a person who’s most calm when I know the general roadmap of how things work. Without knowing things like when (or if) I’ll be returning to my office, seeing my friends, or doing activities I enjoy, life feels strange.

I think it’s important to talk about feelings like these, especially since so many people are experiencing them. As more people get vaccinated and make their forays into the world at large, it’s important to not sweep re-entry anxiety under the rug. Talking about this very common form of anxiety may help people become open to more conversations about mental health, which would be useful to many people as we figure out what the post-COVID world will look like.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.

LITTLE THINGS

Little Things

While “the journey of a thousand miles begins with a single step” is a common phrase, few of us celebrate the individual steps that help us get to that thousand-mile mark.

When I look back at the journey I’ve taken to get to a more stable place, that road is paved with hundreds of tiny milestones, some of which have been far easier than others, that help me lead a more normal life even with OCD.

Something that came to mind recently is that I avoided sleeping on my left side and my stomach for years thanks to an Internet sidebar ad that showed up one time for me. It was from a disreputable source trying to sell some kind of weight loss product, but the image of the stomach being “more full” if someone slept on the left side, and that that could cause nausea or vomiting, somehow got stuck in my head.

Like the vast majority of my obsessive thoughts, I knew it was completely incorrect. There was no way sleeping in a particular position – one I’d slept in plenty of times before – would cause anything to happen to me, but the idea wormed its way into my subconscious, and I found myself unwilling to sleep on my left side or my stomach.

Recently, however, I’ve noticed that the power of this long-held idea has faded. I sleep on my left side perhaps not as frequently as on my right side, but for whatever reason, I’ve felt the urge to sleep on my stomach. I was nervous at first, but quickly realized that it wasn’t actually going to do anything to me. I didn’t believe the ad I saw years ago anymore, and it had no power to make me sleep in any particular way.

And so, I tried sleeping on my stomach. It was scary at first, but I soon realized that I felt completely fine. One night turned into two, and now I sleep on my stomach just about as much as I sleep on my sides.

This might sound insignificant, but to me, every one of these tiny changes I make helps me live a life I can be proud of. I am reminded of this pride every time I try a new food (this week, I tried samosas for the first time as I hesitantly dip my toes into the world of Indian food), try a new activity that scares me, or convince myself out of a panicked thought loop.

Sometimes, when I get ashamed of myself for being afraid of things, I remind myself of these tiny steps and how they can make my fears much more manageable. I think about the time my best friend from college and I went to a Persian restaurant to try tiny bites of the food that might appear at my Nana’s 90th birthday party. I recall when, in the middle of the pandemic, I taught myself how to do things like grocery shopping again by taking two-minute trips to the grocery store where I touched nothing, just stayed in the building. In both of these instances, the “test drive” experiences made the real thing a lot less intimidating and helped me enjoy myself during times I thought were going to be ordeals.

When I discuss the various things I’ve gone through with friends, I sometimes hear that the things in their lives are impossible to handle or that they have no idea how I have handled what I have. I can’t see the whole journey either, when I’m in the middle of it – I just see the parts and the tiny little steps, and as I go along those steps, I find that I’ve gotten a lot farther than I thought.

In the world of therapy, this concept is called graded exposure therapy. Even though it often begins with the help of a therapist, I’ve found that it helps my everyday life to include little things that make me uncomfortable but help resolve my fears and obsessions in the long run. Whether this means listening to ambulance sounds to become less afraid of hospital memories, touching a dog for a moment in order to get used to being around dogs, or taking the tiniest lick of a new food, I appreciate the way these steps add up to create a path to where I want to go.

This mindset is a huge shift from how I used to see things when I was younger – that I was somehow stupid or bad for needing more steps to get to my goals. But now, this is my go-to method for anything that scares me. I’ve found something that works for me, and even if it takes more time and effort to make progress through little steps, I now celebrate them because they help me do the things I want to do and be the person I want to be, while acknowledging the way my head works and making accommodations for myself.

Ellie, a writer new to the Chicago area, was diagnosed with OCD at age 3. She hopes to educate others about her condition and end the stigma against mental illness.